April 12th, 2013
Today was a Sick Kids day! I remember reading something when Charlie was first diagnosed about how it helps kids if you are excited (like, Disney-excited) about going to the hospital. We decided to try that with Charlie, hopefully making the whole experience a little less stressful. Needless to say, it is very difficult to pretend that going to the children's hospital is fun, but off we went, singing songs in the car and clapping about all the 'old friends' we got to see - Kristen, Judith, Louise - oh my goodness!
Charlie had a scheduled, sedated 7am echo and once that was over, we had visits with our cardiologist (Good ol' Dr.D.), our dietitian (who I speak to on the phone, weekly, but never see) and our genetic counselor (to discuss the possible planning of future children!). We arrived early ('better early then late' is our motto!) and sat around for a bit in Tim Horton's, waiting for 6:50am. We went up, they knocked him out, and did the echo. They had to put a little oxygen mask on him because he wasn't SAT-ing enough, but other then that (which I guess is common?), no complications.
|Out like a light.|
|"I'm naht drunk...just gimme ma keys..."|
Dr. D. and Kristen were pleased with his results. Dr. D. said she didn't want us to think his heart was normal (who would think that?!) but that it was definitely improved. I asked Kristen after for his Ejection Fraction number - at last check it was 22% and we were hoping for 30% - and it was 38%! We were so pleased (although they tell you 'not to focus on that number', it's often indicative of how the heart is doing). The Sick Kids staff was pleased too, which is telling.
The meeting with the genetic counselor went well, as did the meeting with the dietitian we had a lunch out and were home by nap time! Overall, a great day at the hospital - not quite Disney but still pretty good. :)
Carry On - fun.