Charlie's Blog

Welcome to a blog about a boy with a rare heart disease, his mum and dad, and his adventures.

Sunday, June 8, 2014

Worst. Blogger. Ever.

I know, I know...I AM the worst blogger ever. I don't update, I forget, I think about it then don't do it...worst. Ever! In my defense, though, I DID go back to work this year and while there is news about Charlie, it's positive. It's more pressing to blog about the negative stuff so everyone know. That said...
The last time I updated was Hallowee'en, 2014. It is now 8 months later. I've been back to work this year, teaching music and a grade 4/5 halftime. It's been lovely, as I switched schools and am with a staff that is supportive and fantastic in only the ways a small staff can be. I love teaching music and love my grade 3/4. I'm headed for a change in the fall since I'm going back full time, but that's classified information for now. Suffice it to say I'll still be music but no longer a 4/5. :)
Matt's fine too...just plugging along, getting to the end of the school year. He only had one more week of classes and then two weeks of 'exams', which is really 'two weeks of trying to find work to do so no one dies of boredom'. This time of year makes me wish I was a high school teacher.
Charlie (the reason you're reading, I'm sure) is GREAT. After my last post, he kept on trucking right through Christmas (while this past Christmas was fun, this year is going to be INSANE), and in January he was doing so well, Sick Kids decided to take out his g-tube! :D It was a bit of a surprise - we had it scheduled for March Break in order to have a restful week after removal, but we were down for yet another infection (4 in 6 months...gross) and since the nurse had his requisition for the removal already...we just took it out! It was a crazy day. Charlie is now eating well (for a toddler...it's frustrating some days but most days he's OK), and that was the beginning of an upswing for him. With the g-tube out, he realized within a week that he could climb on things and jump and do all the things a normal 3 year old could with no discomfort...so he started doing them! We noticed and so did his daycare provider. It was a pretty big deal and continues to be. He is so much more independent and much less 'medical'. Much more a normal boy.
And what a boy he is! Cars, trucks, airplanes, trains...does it 'go'? Than Charlie LOVES IT. He is interested in all things stereotypically 'boy' - throwing, crashing, cars and trucks, building...how did this feminist have a boy like this?! That said, though, he does love the princess movie 'Frozen', so that's something. ;)
He is also a giant flirt! This weekend we had a 9-year-old staying with us and, rather than use the pickup line 'You know, I have my own car/house/vacation island...', he turns to his new friends after lunch and says, 'I've got my own park. It's got a swing and a slide. Want to see my slide?'. Eyebrows and winking abounds, annnnddddd girl is putty in his hands. Hilarious! Matt nor I can see where these traits come from.
Charlie turned 3 in March and we had a great birthday party. Charlie loves to swim so we rented out the local pool and had all his friends over for a swim and some pizza. Both favourites!
Last week we had a bi-annual Sick Kids appointment. The team was very pleased with his progress (weight and height were good), and at our next appointment (November) they're hoping to a) take him off the blood thinner and b) change one of his medications so that we're down to meds twice a day versus thrice. WHICH means no more 11pm bedtime for Matt and I. Thank goodness! :)
That's the update for now. No promises on more regular updates BUT I do promise to try my best. Thanks for reading! Pictures now!

Peek a boo! Making the best of a TERRIBLE WINTER.

Snuggles with Mummy

Happy 3rd birthday!

Christmas morning with Dad (notice the theme PJs)

Neo's at the dentist

Hangin' with baby ducks

Thursday, October 31, 2013

These are the times I will remember...

Part of the reason I keep this blog up is because I want to have some sort of record of Charlie's childhood. Today was a wonderful, completely average, amazing day, so I am going to list the memories we created.

1. I took Charlie to see Matt at work, and to meet my class at school. Everywhere he went, he was greeted by screeching girls whom only dogs could hear. At one point, I caught myself rolling my eyes and thinking 'This must be what going out in public with Justin Beiber is like.' He is an attention magnet and he loves it. I am curious to see if that tendency continues as he grows up - if he likes it, not the screaming girls (I think they'll end once he is 4 or 5).

2. Charlie wanted to be Cookie Monster all. day. long. He only grudgingly took off his costume's hat (googly eyes) when I told him he didn't want to get his hat all sticky with lunch. He was sweaty underneath but apparently his dedication to the character overwhelmed his personal comfort.

3. I made him Halloween breakfast (banana ghost and pumpkin toasts), lunch (Jack-O-Lantern plate) and dinner (Mini ghost pasta and star shaped cucumber). I hope he reads that when he's older and know how much someone has to love someone else to theme three meals for them.

4. Charlie was scared by the scarier costumes tonight, and kept taking my hand and saying 'OK, enough candy, home now.' When a Scream mask came to the door, he opened the door and said, 'Trick-or-NOPE!' and tried to close the door in the poor kid's face. Well played, Cookie Monster. Well played.

5. We practiced ALL WEEK that when you go up to a door you say 'Trick-or-treat' and when you leave you say 'Thank you and happy Halloween!'. Charlie got all of it right, except he kept forgetting to say the 'happy Halloween' part - instead, he'd say, 'Trick-or-treat! Thank you! Happy birthday!'.

Happy Halloween, everyone.

Charlie as a pumpkin for his daycare party. The 'hat' didn't last long.

Nom nom nom. COOKIES!