Charlie's Blog

Welcome to a blog about a boy with a rare heart disease, his mum and dad, and his adventures.
Showing posts with label virus. Show all posts
Showing posts with label virus. Show all posts

Friday, February 3, 2012

I'm making a list...

This week's title is based on a wonderful if completely unknown song by a guy I knew in university. He had a talent for making songs that all sounded kind of the same, but his lyrics were wonderful. His songs were your typical university-dude song, full of heartbreak, in-jokes and mentions of places and people only others at the university would 'get'. I don't think he makes music anymore, but I don't know. I can't find him on Facebook - plus, I don't think he liked me much. He probably wouldn't 'friend' me back.

Anyways. Charlie.

Charlie has done a LOT of barfing over the past few days. He's come down with another bug, and has slept a lot, cried a lot and, yep, barfed a lot. He's become very sensitive to anything barf-inducing - I cleaned the bathroom the other day, and the smell of the cleaner made him barf! At least, that's what I think it was...you never know with babies, 'cause, y'know, they don't talk.

The poor child has barfed everywhere. In his bed. In our bathroom sink. On our (fucking carpeted) stair landing. On the hardwood. And in his new 'barf bucket' (which is really just a reclaimed Tupperware that we lost the lid to) which is great, because it doubles as a toy when it's not filled with barf. Seriously - he says 'dada' into it over and over again, and thinks the mini-echo is hilarious.

We are hoping he is on the mend. He has been sleeping a lot, and he slept less today, he was less cry-ee today, and he hasn't barfed since his 10am feed this morning. I am ever hopeful. We did, however, cancel 'Matt and Kris's Supervowl Extravaganza' for Sunday, because the last thing this kid needs right now is more baby germs. Kids are carriers, man - grubby little germ-ridden carriers. As much as I wanted to see the babies and, of course, their parents, keeping Charlie well is more important. Damn it.

Like I said, I'm making a list. Of everything Charlie does that is really, really funny. It might just be funny to me, or Matt, or our parents, or his aunt and uncle...but that's enough of the people who read this blog to make a list of them. So here it is. Enjoy.

And if you can, if you're ever in western Canada (I think he was Albertan, for some reason), and you're at some hip little coffee house or see a poster for James Kent, go to his concert. Even if you don't get the in-jokes, you'll appreciate the lyrics.

I'm making a list...

1. Now that he's scooching, Charlie looks at something and goes. For. It. He gets this really determined look on his face and just goes.

http://youtu.be/Nx-uNgrh_SA

2. He has a stink face. He often makes it as or after he's pooed.









3. He sticks out his tongue and attempts to lick mine if I stick it out first.















4. When I put my hair in his face, and grabs it with both hands and sticks as much as he can in his mouth. Both of us get very wet. But it's pretty funny.
5. He tries to sing when I sing. So far, no awards.
6. He likes to hump the air with his diaper off.
7. When people clap on tv, Charlie claps too, like he is part of the studio audience.




http://youtu.be/smhPiQERbpA





8. On numerous occasions, although not recently, he has tried to pick my freckles off. Diligently.
9. He likes to march, although he can't stand on his own of walk yet. He has marched since he was 4 months old.

http://youtu.be/8CjM1k4mwjo





10. Lastly, Charlie has various looks. He has a bored look, a 'you've-got-to-be-kidding-me' look, a happy look, a pouty look, a stink face look...all of which are hilarious. I wonder if it's damaging that we laugh at him so much...
















I'm making a list - James Kent

I'm making a list of everything I miss
I'll send it to you
I'll send it to you
I'm writing a list of everything I miss
I'll send it to you
I'll send it to you
And on it wil be the souveniers we bought each other at the ROM
Where you worked in the summer
And on it will be
Those drives in my parents car
Blasting OK-GO on the stereo
And on it will be
Our trip to Drumheller, dinner at Pete's Drive-In, and the Baskin-Robbins
And the best of all, but not least of, on it will be you

I'm writing a list of everything I don't miss
I'll keep it for me
I'll keep it for me
I'm writing a list of everything I don't miss
I'll keep it for me
I'll keep it for me
And on it will be 15-minute Simon Says on those cold nights
When I walked you home
And on it will be
Those times when you woulnd't say what was bothering you
But I knew it was me
And on it will be
All the mistakes I've made
I'll write them on a page, and tear it up
And on it will be
Feeling guilty for three years

I'm writing a list of everything I miss
I'll send it to you
I'll send it to you
I'll send it to you

Saturday, December 17, 2011

Two Steps Back

This has been the worst week yet, mostly because everything was going so well for so long. Perhaps this is a message from above? Some perspective?

Last Monday, Charlie woke up starving. He ate 100mLs of his 160mLs of hyper caloric formula - a big deal for someone who averages 42% of each bottle. At his 10am feed, he only ate 50mLs - fine, because that's about average for him. It would be like us eating cheesecake at every meal and being expected to finish it at every meal.

From there, everything fell apart.

Since then, he has had 300mLs by mouth TOTAL, over the next 5 days. He won't even let the bottle get near him, never mind in his mouth. He was running a light fever for a couple of days, he was being grumpy, having diarrhea, sleeping more and sleeping heavier. No one at the hospital seemed to think this was an issue - even though these changes took place, literally, overnight. On Friday, I emailed a list of concerns to our NPs, ho told me to bring him in 'if I wanted'. Well, geez, thanks for nothing. I didn't take him down, not because I wanted to give it the weekend just in case, as they think at the hospital, that he has a virus and that it'll pass. If he's not better by Monday - obviously on the mend - we are going down.

Our doctor-friend suggested it may be the fact we started yogurt and meat last weekend. I am hoping against hope that IS indeed the problem. We've cut out all solids for a couple of days, so hopefully that does the trick.

And that's the news from our world, suddenly plunged back into the depths of possible heart failure.

Two Steps Back - Craig David

You know I'm the kinda guy that does 9 to 5
Working real hard it's the way I live my life
Back home just me and you girl all alone
With no one interrupting
Switch off the phone
But I could be that other guy
Who comes home late night after night and tells you lies
So why are you trippin out, on me girl all the time
When every day it's only you that's on my mind oh

[Chorus:]
Every time we take one step forward
You take 2 steps back
Everytime it's right you bring left back (oh, oh)
Girl you really oughta think about it
Cuz there's really no doubt about it
You know I'm been there for you and that's the truth [x2]

You know you're the kinda girl that doesn't need to front
Keep it real, let me know just what you want
Sometimes I just don't know when to stop
You worry so much over nothing
You're just losing what you've got
Now can't you see there's no other girl
I think you're the most beautiful woman in this world
Yeah
But you say I don't appreciate you
And I don't know how to treat you
We don't do the same thing we did no more

[Chorus]

Remember it wasn't that long ago
You told me that you love me so
Don't forget all the nights we shared
When you told me girl how much you cared
It could be a little straight
But this is the way plays to play
I'm not that kinda man
Why can't you understand
Cause I
Want you to trust in me
Baby girl can't you see
You only gonna mess things up
You've done enough
Why can't you stop
(Cause) You're gonna lose what's good to you
And it's the last thing you wanna do
Won't find another like me, oohhh